I admit I’ve been stupendously lax in my writing this year. A thing happened, I attributed it to posting about a very important and extremely traumatic event that occurred wayyyyyyy back in January, and I’ve associated my writing with the loss of friendships in direct (and epic) proportions.
Also, I’ve reached a limit. I don’t actually know what that limit is, but it sure as shit is in regards to health and lupus and the asshatery (totally a word) of managing The Everything within the context of my reality.
What better way to get back into the throes of highlighting why I even blog in the first place with signing up for WEGO Health‘s Health Activist Writer’s Month Challenge??? #HAWMC if you want to follow along on other social media sites.
So many people. So many voices. So much networking and the “You’re NOT alone.”
Also, because I’m batshit crazy. True story.
Welcome to Day 1 of the November HAWMC! First,
let’s get to know each other! What drives you to
write about your health? What do you want other
Health Activists to know about your condition and
your activism? Reflect on this for 15-20 minutes
I first started out writing with the hopes of sharing information and appropriate links to resources and websites to direct people to find the help that they require when living with the autoimmune disease, Lupus.
I sometimes do. Sometimes. There’s Google. The better sites have garnered much more street cred and show up.
Nope. I write about LIVING with Lupus and the managing of The Everything. I write it real and raw and sometimes I hesitate to hit “publish” because I fear I’m going to some special kind of hell for using colourful language coupled with a hearty side of sarcasm.
THAT is why I write. Out of eleventy-billion OTHER people blogging about Lupus, offering websites chock full of information and resources, I discovered there were often two types of information out there: All Puppies, Rainbows & Kittens, 24/7….or Call the Whaaaaaaaambulance.
I want to be that middle ground. That reality, with appropriate Canadian-related content, that hits you right where the good, the bad and the “what the actual fuck?” collide.
THAT, is Lupus Interrupted.
I want people to read and know and hell, maybe even sympathize on occasion, with the reality of living…of doing all that I do…in constant pain. My Lupus is coming into it’s first year of remission (actually termed “quiescence”) this month…but I still endure the pain of fibromyalgia on a daily basis. I still have to watch my blood glucose and know the A1C and all that good shit that transforms my life into a made-for-tv-movie whilst being a solo parent and The Everything that goes along with THAT spectacular form of hell.
I strive to help people find their #gladitude…their escapism…their self-care that is not just essential, but CRITICAL, to the perseverance through life with a chronic disease. I hope that writing about my Floofs (guinea pigs), pet therapy, “Colour!” and the Cosmos…that people find their own comforting Things that help them along the journey.
Unlike many other social media platforms…Lupus Interrupted isn’t a highlight reel. Okay, so maybe I still like to use filters of selfies because, hey, filters are this gal’s BFF, third only to Google and most importantly, coffee.
I write for me. What’s been a glorious bonus, is its impact on the lives of others going through the journey of chronic conditions.
You’re not alone, and you matter to me.
Buckle up, peeps…a solid month of the writing of the musings of my brain.
Grab a java and enjoy the ride…….