Like LOLcats…but much less funny.
Actually, it’s really…REALLY… not funny at all.
Oh, I’m just poking fun at one of the eleventy-billion things that seem to afflict me on any given Sunday (Wait a sec…wrong movie. Again.) because I’m so bloody tired of it all…but I made a promise to continue to educate and inform on the chaos of my reality of my made-for-tv-movie kind of life.
I have Secondary Sjögren’s Syndrome. Pronounced, “SHOW-grins.”
“What the ….??”
“… is a systemic autoimmune disease that preferentially attacks and damages the salivary, tear and mucous-secreting glands, resulting in dry mouth or swollen salivary glands. It is considered to be one of the most prevalent autoimmune diseases. Sjögren’s is a chronic disease that can cause arthritis, painful weak muscles, neuropathy and debilitating fatigue. It can result in inflammation of the lungs, kidneys, GI system, blood vessels, liver, brain or thyroid gland. Sjögren’s syndrome is a serious condition and is often under-recognized and under-treated.”~ Sjögren’s Society of Canada
Everything you didn’t ever want to know about something you never wanted to hear about…all concisely structure for your non-reading enjoyment.
Honestly…What. The. Hell. No, really…I get it.
“So what’s with the “secondary” effect of it…why is it not your “primary” or whatever??”
You play poker at all? If not, I’m sure you can Google it’s basics. Lupus trumps “x”, wherein “x” then trumps “y”. It’s all about the hand you’re given…and this most assuredly AIN’T no Kenny Rogers song…
Apparently, I most assuredly require the “care” to know what this does…because not only does it create the dry eyes so bad I’m going to likely (read: will) have to stop wearing my contact lenses…which in itself is a bloody catastrophic happening…
[enter memory, stage left]
I was in grade ten…getting onto the school bus. I sat with my face pressed into a book, hoping they weren’t on the bus that day. Again. The two boys that would throw peanuts at me on the bus because I was the “four-eyes”…the brainiac…with my curly permed short hair, glasses as big as my face, braces…
…the boys were in grade nine. PEANUTS. At my head. *sigh*
No, this also affects my oral care…having little to no saliva at times to naturally “rinse” my mouth out = dental nightmare…having to watch how I eat in case it’s bad enough to run the risk of choking on my food as my throat clenches up in a spasm as there’s no liquid to coax the food down…
Ya, it can affect your internal organs. I seem to be a walking “shit outta luck” billboard.
Want to sleep? S.O.L.
Want to be pain-free? S.O.L.
Want to eat? S.O.L.
Want to sing?……….. :o( I’ve lost my general ability to sing, as well…I used to be in choirs…now it’s hit or miss…and mostly the latter…
Protect Your Voice
People with Sjögren’s syndrome can develop hoarseness if their vocal cords become inflamed as part of the disease or become irritated from throat dryness or coughing. To prevent further strain on your vocal cords, try not to clear your throat before speaking. Instead, take a sip of water, chew sugar-free gum, or suck on sugar-free candy. Or else make an “h” sound, hum, or laugh to gently bring the vocal cords together so you can get sound out. Clearing your throat does the same thing, but it’s hard on the vocal cords, and you want to avoid irritating them further. ~ as taken from http://www.niams.nih.gov/Health_Info/Sjogrens_Syndrome/
Want to …. ya….you get it.
“Is there a cure for this Grinz thing?”
“So, you can’t sing. And you need eye drops.”
But WAIT! There’s MORE!!
“Kidney problems. The kidneys filter waste products from the blood and remove them from the body through urine. The most common kidney problem in people with Sjögren’s syndrome is interstitial nephritis, or inflammation of the tissue around the kidney’s filters, which can occur even before dry eyes and dry mouth. Inflammation of the filters themselves, called glomerulonephritis, is less common. Some people develop renal tubular acidosis, which means they can’t get rid of certain acids through urine. The amount of potassium in their blood drops, causing an imbalance in blood chemicals that can affect the heart, muscles, and nerves.
Often, doctors do not treat these problems unless they start to affect kidney function or cause other health problems. However, they keep a close eye on the problem through regular exams, and will prescribe medicines called alkaline agents to balance blood chemicals when necessary. Corticosteroids or immunosuppressants are used to treat more severe cases.”
Ahhhhhhhhh….yes. Those bloody kidneys keep impeding my plans to take over the world!! Dagnammit!!
So………..ya. I’m not doing so well……….kidney-wise.
Not because of THIS…but because of the lupus.
As in, at all.
THIS, however, does not help.
It’s a fight I need to win.