WEGO Health Activist Awards Judge 2016
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What IS Lupus? You don’t look sick….
Two questions, one answer. I like this link the best because it doesn’t offend my brain cells (of which I’m currently down to three) with medical mumbo jumbo bullhog….
What do you need to take from this?
1. You can’t “see” it….I don’t have cancer, therefore you can’t see me lose my hair from chemo. I don’t have a broken limb, so you can’t see me wearing a cast. I don’t have kidney failure (edit: pre-diagnosis), so you can’t see me at the hospital for dialysis.
My body attacks itself.
2. It says, “may”….I may have intense joint pain, person #2 may not. I may have the butterfly rash, someone may have mouth ulcers.
This is why there is no “cure”. What works for one thing, won’t work for EVERYTHING.
3. SLE may be mild or severe enough to cause death.
“Life is like a box ‘o chocolates….ya never know whatcha gonna get.” Yup. Roulette, anyone?
But in today’s modern medicine (said with highest sarcasm, because anyone who knows lupus, knows how long they fought for an actual diagnosis) there are, indeed, treatments available that will allow for a fulfilling life.
4. Check out the symptoms. See anything you CAN see? Nope. Oh wait…..the butterfly rash…oh, that is a fun one, indeed….don’t believe me?? This is my very first publication EVER EVER EVER of….THIS:
THIS, my friends, is the “face” of lupus. This is that “butterfly rash” so wonderfully depicted in my numerous Google searches…you know, kinda like a car accident… you know you SHOULDN’T look…but can’t help yourself?
Not friggin’ cool 🙁 Not at all. Did you know I’ve worn makeup to bed just in case something happened in the
middle of the night and I had to leave the house?
Bet you didn’t.
I HAVE managed to find a couple of really great makeup products to help, as pictured….my favourite is BareMinerals by Bare Escentuals…but it isn’t just a matter of makeup. It’s also a matter of finding moisturizers, cleansers, spot treatments…all frustratingly difficult for thin, hyper-reactive and sensitive skin.
That’s just the skin issues.
Imagine how difficult and what a long and arduous process it is to find medications…which, again, I also fear with great magnitude….to manage….well…everything ELSE.
Right now I’m looking into natural and holistic products to aid in my reduction of inflammation…please post your suggestions!!
**EDIT: This post was the very first post I wrote as “Lupus Interrupted.” 23 people read it. I didn’t even understand why at that time…now? Well…what on this glorious green and blue orb do people, exactly, bring from my writing?? I have *no* bloody clue. But ain’t the bat-shit crazy ride worth it?!?!? Oh, and I don’t have bangs anymore 😉